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International severe asthma registry (ISAR) : protocol for a global registry

dc.contributor.authorFitzGerald, J. Mark
dc.contributor.authorTran, Trung N.
dc.contributor.authorAlacqua, Marianna
dc.contributor.authorAltraja, Alan
dc.contributor.authorBacker, Vibeke
dc.contributor.authorBjermer, Leif
dc.contributor.authorBjornsdottir, Unnur
dc.contributor.authorBourdin, Arnaud
dc.contributor.authorBrusselle, Guy
dc.contributor.authorBulathsinhala, Lakmini
dc.contributor.authorBusby, John
dc.contributor.authorCanonica, Giorgio W.
dc.contributor.authorCarter, Victoria
dc.contributor.authorChaudhry, Isha
dc.contributor.authorCho, You Sook
dc.contributor.authorChristoff, George
dc.contributor.authorCosio, Borja G.
dc.contributor.authorCostello, Richard W.
dc.contributor.authorEleangovan, Neva
dc.contributor.authorGibson, Peter G.
dc.contributor.authorHeaney, Liam G.
dc.contributor.authorHeffler, Enrico
dc.contributor.authorHew, Mark
dc.contributor.authorHosseini, Naeimeh
dc.contributor.authorIwanaga, Takashi
dc.contributor.authorJackson, David J.
dc.contributor.authorJones, Rupert
dc.contributor.authorKoh, Mariko S.
dc.contributor.authorLe, Thao
dc.contributor.authorLehtimäki, Lauri
dc.contributor.authorLudviksdottir, Dora
dc.contributor.authorMaitland-van der Zee, Anke Hilse
dc.contributor.authorMenzies-Gow, Andrew
dc.contributor.authorMurray, Ruth B.
dc.contributor.authorPapadopoulos, Nikolaos G.
dc.contributor.authorPerez-de-Llano, Luis
dc.contributor.authorPeters, Matthew
dc.contributor.authorPfeffer, Paul E.
dc.contributor.authorPopov, Todor A.
dc.contributor.authorPorsbjerg, Celeste M.
dc.contributor.authorPrice, Chris A.
dc.contributor.authorRhee, Chin K.
dc.contributor.authorSadatsafavi, Mohsen
dc.contributor.authorTohda, Yuji
dc.contributor.authorEileen, Wang
dc.contributor.authorWechsler, Michael E.
dc.contributor.authorZangrilli, James
dc.contributor.authorPrice, David
dc.date.accessioned2020-08-25T09:10:01Z
dc.date.available2020-08-25T09:10:01Z
dc.date.issued2020-08-14
dc.identifier.citationFitzGerald , J M , Tran , T N , Alacqua , M , Altraja , A , Backer , V , Bjermer , L , Bjornsdottir , U , Bourdin , A , Brusselle , G , Bulathsinhala , L , Busby , J , Canonica , G W , Carter , V , Chaudhry , I , Cho , Y S , Christoff , G , Cosio , B G , Costello , R W , Eleangovan , N , Gibson , P G , Heaney , L G , Heffler , E , Hew , M , Hosseini , N , Iwanaga , T , Jackson , D J , Jones , R , Koh , M S , Le , T , Lehtimäki , L , Ludviksdottir , D , Maitland-van der Zee , A H , Menzies-Gow , A , Murray , R B , Papadopoulos , N G , Perez-de-Llano , L , Peters , M , Pfeffer , P E , Popov , T A , Porsbjerg , C M , Price , C A , Rhee , C K , Sadatsafavi , M , Tohda , Y , Eileen , W , Wechsler , M E , Zangrilli , J & Price , D 2020 , ' International severe asthma registry (ISAR) : protocol for a global registry ' , BMC Medical Research Methodology , vol. 20 , 212 . https://doi.org/10.1186/s12874-020-01065-0en
dc.identifier.issn1471-2288
dc.identifier.otherPURE: 171983726
dc.identifier.otherPURE UUID: 9fa09035-a58d-4d91-8340-3763ea43c09d
dc.identifier.otherPubMed: 32819285
dc.identifier.otherPubMedCentral: PMC7439682
dc.identifier.otherScopus: 85089769760
dc.identifier.otherWOS: 000567003800001
dc.identifier.urihttps://hdl.handle.net/2164/14996
dc.descriptionAcknowledgements The authors thank the following individuals who contributed to the initial set-up of ISAR, provided input to the development of the protocol and/or were involved in local implementation of ISAR: Elisabeth Bel, Roland Buhl, Sverre Lehmann, Stelios Loukidis, Richard Martin, Juno Pak, Pearlanne Zelar ney, Joy Zimmer, Christena Kolakowski, Margo Brown, Jessica Cummings, Jennifer Brandorff, Seth Skelton, John Upham, Philip Bardin, Paul Reynolds, David Langton, Peter Middleton, Belinda Cochrane, Katya Vasileva Noleva, Plamen Hristov Yakovliev, Sonya Metodieva Genova, Violina Milchova Vasi leva, Darina Petrova Dimova, Nadezhda K Takovska, Cvetantka Hristova Odz hakova, Eleonora M Stamenova, Diana X Hristova, Vincente Plaza, Ian Hirsch, Cekomir Vodenicharov, Alexandrina Vodenicharova and Magdalena Alexandrova. Medical writing support was provided by Michelle Rebello, PhD, and Liam Gillies, PhD, of Cactus Communications (Mumbai, India). Funding The International Severe Asthma Registry is conducted by Optimum Patient Care Global Limited, and co-funded by Optimum Patient Care Global Limited and AstraZeneca. ISAR is supported by grants from AstraZeneca and Optimum Patient Care (OPC) Global (a not-for-profit social enterprise). The ISAR steering committee (ISC) was involved in the development of the protocol and is responsible for approving research proposals via a democratic voting process. In addition to 47 clinicians and researchers with an interest and experience in severe asthma, the ISC also includes members of OPC and four medical experts from AstraZeneca. AstraZeneca reviewed the draft before submission; however, decision to submit was made by the authors. Medical writing support was funded by AstraZeneca in accordance with Good Publication Practice (GPP3) guidelines (http://www.ismpp.org/gpp3).en
dc.format.extent14
dc.language.isoeng
dc.relation.ispartofBMC Medical Research Methodologyen
dc.rights© The Author(s). 2020 Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. (http://creativecommons.org/publicdomain/zero/1.0/)en
dc.subjectdisease registryen
dc.subjectprotocolen
dc.subjectreal-worlden
dc.subjectsevere asthmaen
dc.subjectDisease registryen
dc.subjectReal-worlden
dc.subjectSevere asthmaen
dc.subjectProtocolen
dc.subjectDEFINITIONen
dc.subjectDESIGNen
dc.subjectMEPOLIZUMABen
dc.subjectSAFETYen
dc.subjectPHENOTYPESen
dc.subjectTO-TREAT ASTHMAen
dc.subjectCOSTSen
dc.subjectEXACERBATIONSen
dc.subjectHEALTH-CAREen
dc.subjectOUTCOMESen
dc.subjectR Medicine (General)en
dc.subjectHealth Informaticsen
dc.subjectEpidemiologyen
dc.subjectSupplementary Dataen
dc.subject.lccR1en
dc.titleInternational severe asthma registry (ISAR) : protocol for a global registryen
dc.typeJournal articleen
dc.contributor.institutionUniversity of Aberdeen.Institute of Applied Health Sciencesen
dc.contributor.institutionUniversity of Aberdeen.Other Applied Health Sciencesen
dc.description.statusPeer revieweden
dc.description.versionPublisher PDFen
dc.identifier.doihttps://doi.org/10.1186/s12874-020-01065-0
dc.identifier.urlhttp://www.scopus.com/inward/record.url?scp=85089769760&partnerID=8YFLogxKen
dc.identifier.vol20en


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