Life ‘on high alert’ : how do people with a family history of motor neurone disease make sense of genetic risk? Insights from an online forum
| dc.contributor.author | Howard, Jade | |
| dc.contributor.author | Mazanderani , Fadhila | |
| dc.contributor.author | Locock, Louise | |
| dc.contributor.institution | University of Aberdeen.Medicine, Medical Sciences & Nutrition | en |
| dc.contributor.institution | University of Aberdeen.Aberdeen Centre for Evaluation | en |
| dc.date.accessioned | 2021-11-01T14:55:01Z | |
| dc.date.available | 2021-11-01T14:55:01Z | |
| dc.date.issued | 2021-08-18 | |
| dc.description | Open access via Taylor and Francis agreement Acknowledgements We wish to thank the MND Association for allowing us to use the publicly available information on the MND Association Forum for this research, and for their overall support of the study. We are grateful to Karen Forrest Keenan and Gabrielle King for feedback on an earlier version of the paper. Jade Howard is funded by a doctoral studentship provided by the Institute of Applied Health Sciences, University of Aberdeen. Funding Jade Howard is funded by a doctoral studentship provided by the Institute of Applied Health Sciences, University of Aberdeen. Louise Locock is supported by funding from the Scottish Chief Scientist Office. | en |
| dc.description.status | Peer reviewed | en |
| dc.format.extent | 17 | |
| dc.format.extent | 716600 | |
| dc.identifier | 195488830 | |
| dc.identifier | 9c424ff6-cf1c-49df-a0e7-b3e738ad34ba | |
| dc.identifier | 85108781620 | |
| dc.identifier.citation | Howard, J, Mazanderani , F & Locock, L 2021, 'Life ‘on high alert’ : how do people with a family history of motor neurone disease make sense of genetic risk? Insights from an online forum', Health, Risk and Society, vol. 23, no. 5-6, pp. 179–195. https://doi.org/10.1080/13698575.2021.1946488 | en |
| dc.identifier.doi | 10.1080/13698575.2021.1946488 | |
| dc.identifier.iss | 5 | en |
| dc.identifier.issn | 1369-8575 | |
| dc.identifier.other | ORCID: /0000-0002-8109-1930/work/96307993 | |
| dc.identifier.other | Jisc: 7462e0bc7b2248d1b63bc3925f2d9b8c | |
| dc.identifier.uri | https://hdl.handle.net/2164/17422 | |
| dc.identifier.url | http://www.scopus.com/inward/record.url?scp=85108781620&partnerID=8YFLogxK | en |
| dc.identifier.vol | 23 | en |
| dc.language.iso | eng | |
| dc.relation.ispartof | Health, Risk and Society | en |
| dc.subject | genetic risk | en |
| dc.subject | uncertainty | en |
| dc.subject | motor neurone disease | en |
| dc.subject | online forums | en |
| dc.subject | experiential knowledge | en |
| dc.subject | R Medicine | en |
| dc.subject | Chief Scientist Office (CSO) | en |
| dc.subject.lcc | R | en |
| dc.title | Life ‘on high alert’ : how do people with a family history of motor neurone disease make sense of genetic risk? Insights from an online forum | en |
| dc.type | Journal article | en |
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