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Health Care Delivery Practices in Huntington's Disease Specialty Clinics : An International Survey

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dc.contributor.authorFrich, Jan C.
dc.contributor.authorRae, Daniela
dc.contributor.authorRoxburgh, Richard
dc.contributor.authorMiedzybrodzka, Zofia H.
dc.contributor.authorEdmondson, Mary
dc.contributor.authorPope, Erika Bjorklund
dc.contributor.authorGoodman, LaVonne
dc.contributor.authorHaddad, Monica S.
dc.contributor.authorGiuliano, Joe
dc.contributor.authorNelson, Eugene C.
dc.contributor.authorGuttman, Mark
dc.contributor.authorNance, Martha
dc.contributor.institutionUniversity of Aberdeen.Aberdeen Centre for Evaluationen
dc.contributor.institutionUniversity of Aberdeen.Institute of Applied Health Sciencesen
dc.contributor.institutionUniversity of Aberdeen.Applied Medicineen
dc.contributor.institutionUniversity of Aberdeen.Medical Sciencesen
dc.date.accessioned2016-08-23T14:00:02Z
dc.date.available2016-08-23T14:00:02Z
dc.date.issued2016-07-01
dc.descriptionThe CHDI Foundation, Inc. funds Enroll-HD and the activities of the Enroll-HD Care Improvement Committee, including the present survey. We would like to acknowledge the Enroll-HD and REGISTRY administrative staff that assisted in the recruitment of sites and sites that completed the survey.en
dc.description.statusPeer revieweden
dc.format.extent7
dc.format.extent67174
dc.identifier69220746
dc.identifier5d1b32eb-3577-4287-b516-939e19f2b95f
dc.identifier27372053
dc.identifier84991358631
dc.identifier.citationFrich, J C, Rae, D, Roxburgh, R, Miedzybrodzka, Z H, Edmondson, M, Pope, E B, Goodman, L, Haddad, M S, Giuliano, J, Nelson, E C, Guttman, M & Nance, M 2016, 'Health Care Delivery Practices in Huntington's Disease Specialty Clinics : An International Survey', Journal of Huntington's disease, vol. 5, no. 2, pp. 207-213. https://doi.org/10.3233/JHD-160192en
dc.identifier.doi10.3233/JHD-160192
dc.identifier.iss2en
dc.identifier.issn1879-6397
dc.identifier.otherORCID: /0000-0003-2890-8136/work/175113389
dc.identifier.urihttp://hdl.handle.net/2164/7368
dc.identifier.vol5en
dc.language.isoeng
dc.relation.ispartofJournal of Huntington's diseaseen
dc.subjectHuntington’s diseaseen
dc.subjecthealth servicesen
dc.subjectquality of health careen
dc.subjectR Medicineen
dc.subject.lccRen
dc.titleHealth Care Delivery Practices in Huntington's Disease Specialty Clinics : An International Surveyen
dc.typeJournal articleen

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