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Development of the Advancing the Patient Experience (APEX) in COPD Registry : A Modified Delphi Study

dc.contributor.authorEdwards, Chelsea L.
dc.contributor.authorKaplan, Alan G.
dc.contributor.authorYawn, Barbara P.
dc.contributor.authorKocks, Janwillem W. H.
dc.contributor.authorBulathsinhala, Lakmini
dc.contributor.authorCarter, Victoria A.
dc.contributor.authorChang, Ku-Lang
dc.contributor.authorFox, Chester
dc.contributor.authorGopalan, Gokul
dc.contributor.authorHan, MeiLan K.
dc.contributor.authorKruszyk, Maja
dc.contributor.authorLe Lievre, Chantal E.
dc.contributor.authorMahle, Cathy
dc.contributor.authorMake, Barry
dc.contributor.authorPace, Wilson D.
dc.contributor.authorPrice, Chris
dc.contributor.authorShaikh, Asif
dc.contributor.authorSkolnik, Neil
dc.contributor.authorPrice, David B.
dc.contributor.institutionUniversity of Aberdeen.Institute of Applied Health Sciencesen
dc.contributor.institutionUniversity of Aberdeen.Other Applied Health Sciencesen
dc.date.accessioned2021-07-13T23:08:59Z
dc.date.available2021-07-13T23:08:59Z
dc.date.embargoedUntil2021-07-14
dc.date.issued2021-01
dc.descriptionFunding statement: APEX COPD is conducted by Optimum Patient Care (OPC) Global Limited, and co-funded by OPC Global and Boehringer Ingelheim Pharmaceuticals, Inc. (BIPI). The author(s) meet criteria for authorship as recommended by the International Committee of Medical Journal Editors (ICMJE). The authors received no direct compensation related to the development of the manuscript. Writing, editorial support, and/or formatting assistance was provided by Ms. Audrey Ang of the Observational and Pragmatic Research Institute, Singapore, and Dr. Lisa Buttle of Medscript Ltd, Ireland, which was funded by BIPI. BIPI was given the opportunity to review the manuscript for medical and scientific accuracy as well as intellectual property considerations. Acknowledgments The author(s) meet criteria for authorship as recommended by the International Committee of Medical Journal Editors (ICMJE). We thank Dr. Alvaro Aranda (Hospital Auxilio Mutuo, San Juan, Puerto Rico) for his scientific and clinical contributions during the drafting of this manuscript. We also thank Ms. Audrey Ang for editorial assistance, Ms. Bronte Sawyer for project coordination, and Dr. Lisa Buttle for assistance with drafting the article. Dr. Ruth B. Murray is acknowledged for her substantial contribution to the interpretation, summarization and presentation of data in this article and significant intellectual input to the manuscript. She has provided her final approval of the version to be published and agreed to be accountable for all aspects of the work in ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved. Dr. Ruth B. Murray is the founder and director of Medscript Ltd., a company that provided writing and editorial support for APEX COPD publications.en
dc.description.statusPeer revieweden
dc.format.extent17
dc.format.extent792844
dc.identifier171983978
dc.identifier682889b8-bb62-4d4b-9553-729626e6bed1
dc.identifier33238085
dc.identifier85097867260
dc.identifier000614139400014
dc.identifier.citationEdwards, C L, Kaplan, A G, Yawn, B P, Kocks, J W H, Bulathsinhala, L, Carter, V A, Chang, K-L, Fox, C, Gopalan, G, Han, M K, Kruszyk, M, Le Lievre, C E, Mahle, C, Make, B, Pace, W D, Price, C, Shaikh, A, Skolnik, N & Price, D B 2021, 'Development of the Advancing the Patient Experience (APEX) in COPD Registry : A Modified Delphi Study', COPD: Journal of Chronic Obstructive Pulmonary Disease, vol. 8, no. 1, pp. 135-151. https://doi.org/10.15326/jcopdf.2020.0154en
dc.identifier.doi10.15326/jcopdf.2020.0154
dc.identifier.iss1en
dc.identifier.issn1541-2555
dc.identifier.urihttps://hdl.handle.net/2164/16816
dc.identifier.urlhttp://www.scopus.com/inward/record.url?scp=85097867260&partnerID=8YFLogxKen
dc.identifier.vol8en
dc.language.isoeng
dc.relation.ispartofCOPD: Journal of Chronic Obstructive Pulmonary Diseaseen
dc.subjectprimary careen
dc.subjectpatient reported outcomesen
dc.subjectresearchen
dc.subjectclinically relevant data collectionen
dc.subjectregistryen
dc.subjectPatient-reported outcomesen
dc.subjectRegistryen
dc.subjectResearchen
dc.subjectPrimary careen
dc.subjectClinically relevant data collectionen
dc.subjectUNITED-STATESen
dc.subjectDIAGNOSISen
dc.subjectpatient-reported outcomesen
dc.subjectMANAGEMENTen
dc.subjectADULTSen
dc.subjectAMERICAN-COLLEGEen
dc.subjectLUNG-FUNCTIONen
dc.subjectSOCIETYen
dc.subjectOBSTRUCTIVE PULMONARY-DISEASEen
dc.subjectCLINICAL-PRACTICE GUIDELINEen
dc.subjectR Medicine (General)en
dc.subjectPulmonary and Respiratory Medicineen
dc.subject.lccR1en
dc.titleDevelopment of the Advancing the Patient Experience (APEX) in COPD Registry : A Modified Delphi Studyen
dc.typeJournal articleen

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