Master protocol for a series of cohort-based randomized controlled trials to test tools to communicate research results to study participants and others with relevant lived experience : the SPIN-CLEAR Trials

Thombs, Brett D.Adams, ClaireNassar, Elsa-LynnCarrier, Marie-EveGolberg, MeiraBharthi, KanikaWurz, AmandaSouth, AnnabelleKwakkenbos, LindaHoa, SabrinaRice, Danielle B.Guillot, GenevièveLawrie-Jones, AmandaSauvé, MaureenBartlett, Susan J.Fortune, CatherineGietzen, AmyGottesman, KarenHudson, MarieHummers, Laura K.Malcarne, Vanessa L.Mayes, Maureen D.Richard, MichelleStempel, JamesWojeck, Robyn K.Blagrave, KathleenBoruff, Jill T.Cook, VanessaCulos-Reed, NicoleFröbert, OleGillies, KatieGranikov, VeraHemkens, Lars G.Jimenez, Elizabeth YakesKocher, AgnesLeite, CatarinaLim, Mathew A. W. T.Maltez, NancyMichalski, JohnMieszczak, TracyNdosi, MwidimiPope, JanetRannou, FrançoisRozee, KenStraus, Sharon E.Sydes, Matthew R.Thabane, LehanaVarga, JohnYap, TamiRobinson, DavidSPIN Investigators2025-09-092025-05-08Thombs, B D, Adams, C, Nassar, E-L, Carrier, M-E, Golberg, M, Bharthi, K, Wurz, A, South, A, Kwakkenbos, L, Hoa, S, Rice, D B, Guillot, G, Lawrie-Jones, A, Sauvé, M, Bartlett, S J, Fortune, C, Gietzen, A, Gottesman, K, Hudson, M, Hummers, L K, Malcarne, V L, Mayes, M D, Richard, M, Stempel, J, Wojeck, R K, Blagrave, K, Boruff, J T, Cook, V, Culos-Reed, N, Fröbert, O, Gillies, K, Granikov, V, Hemkens, L G, Jimenez, E Y, Kocher, A, Leite, C, Lim, M A W T, Maltez, N, Michalski, J, Mieszczak, T, Ndosi, M, Pope, J, Rannou, F, Rozee, K, Straus, S E, Sydes, M R, Thabane, L, Varga, J, Yap, T, Robinson, D & SPIN Investigators 2025, 'Master protocol for a series of cohort-based randomized controlled trials to test tools to communicate research results to study participants and others with relevant lived experience : the SPIN-CLEAR Trials', Trials, vol. 26, no. 1, 149. https://doi.org/10.1186/s13063-025-08846-21745-6215RIS: urn:C1F94323BFAC37272EE181D572071D87RIS: Thombs2025ORCID: /0000-0001-7890-2854/work/190938305https://hdl.handle.net/2164/25957141357851engSystemic sclerosisSclerodermaResearch disseminationRandomized controlled trialsPatient-oriented researchPatient and public involvementPatient engagementKnowledge translationHumansScleroderma, Systemic/psychologyComprehensionRandomized Controlled Trials as TopicInformation Dissemination/methodsMulticenter Studies as TopicResearch Subjects/psychologyResearch DesignCommunicationR Medicine (General)Medicine (miscellaneous)Pharmacology (medical)Supplementary DataDASR1Master protocol for a series of cohort-based randomized controlled trials to test tools to communicate research results to study participants and others with relevant lived experience : the SPIN-CLEAR TrialsJournal article10.1186/s13063-025-08846-2http://www.scopus.com/inward/record.url?scp=105005029695&partnerID=8YFLogxK261